Tuesday, 9 May 2017
I 'suffer' from an auto immune disease called Polymyalgia Rheumatica, it is not life threatening, just blooming annoying.
It comes and goes, triggered by a trauma or incidence of excessive stress.
I have been in remission for just over six years ...until now.
If you remember, last May I had the fall that damaged my knee, that was the trigger for this relapse.
As my Rheumatologist reminds me "PMR takes a year to cook"...
....then there is a "year, or eighteen months of hell"...
....followed by a "year of tapering off" before it fades into the background again.
(If you have PMR for longer then it is Fibromyalgia. They are similar in symptoms but with distinct, notable differences)
Well, I have had my year of "cooking" now I prepare myself for the year ahead.
Having been here before so know what to expect and will weather the storm without the offered medication. As always I refuse the mega doses of steroids to take for two years minimum, or the offer of Methotrexate.
Am used to living with chronic pain so this just takes it up a notch, it is the limited mobility that annoys! So will just get the walking stick out of moth balls ready for use and carry on.
And get to visit my rheumatologist more often...Thursday this week again.
The photos are off a walk my husband took two weeks ago to see the Bluebells in the wood.
We were a week late really as they were just past their best, but uplifting to the soul none the less.
This fallen branch was covered in a velvety moss that was wonderful to the touch.
Hoping some one somewhere is having warmer weather than we are in the UK...it is mighty chilly and extremely windy......brrrrr
Wednesday, 3 May 2017
I have mentioned before on this blog, the sad fact that all my three children have genetic hereditary illnesses.
My eldest daughter is severely affected by Ehlers Danlos Syndrome.
She is now chronically disabled and mobility very limited.
A pain free day is never an option.
Her younger sister is also affected but in a much milder form..for now.
We all know that it can, and will progress.
May has been designated EDS Awareness Month
As a chronic pain sufferer myself, am fully aware that pain is invisible to those around you and hard for non sufferers to really understand how it limits life.
So, am just making you aware...
...please go and read about it, it is more common than you think.
Thank you for listening
Saturday, 29 April 2017
Smile Number 1....a true story
Husband and I always sleep with the bedroom window open, even in the depths of winter. The only thing that hampers this is the fact that the front of our house seems to be in a wind tunnel and the strong winds play havoc with the window.
The window in question is a designated 'fire escape' window because the roof of the bay window is directly underneath it. These windows have specialist hinges allowing it to be opened flat against the outside wall... for easy exit in case of fire.
Why am I telling you this? If the wind blows up in the night the window can, and does fly open if I don't catch it in time, which I usually do....
however...on Friday night/Saturday early morning I didn't catch it and was woken up with curtains billowing wide into the bedroom. The window is on my side of the bed and I'm the light sleeper so it is up to me, usually, to shut the window. This time the wind had caught the window full on and it was back flat against the wall which meant I had to fully lean out to haul it back in again.
This done and peace restored once more, I get back into bed only for my husband to open one eye and say..." You do realise, you haven't got any clothes on?"
Too much information I know, but I don't wear night attire, but have a long tee-shirt at hand if needed...in the rush I had forgotten it....ooops!
It is not uncommon for folk to be out and about in this area at 2.0am in the morning and I didn't have my glasses on so wouldn't have spotted any body.
Smile Number 2 and 3
These gems were in a newsletter aimed at 'seniors' I picked up recently and made me laugh out loud.
Pure examples of British Humour, so it set me wondering as to how many of you will actually understand...
Joke of the Day
"To help save the economy, the government will announce next month the the Immigration Department will start deporting Senior Citizens, instead of illegals in order to lower pensions and health care costs (flu jabs, walkers, wheelchairs, free prescriptions, bus passes etc)
The Government has established that older people are easier to catch and in most cases will not remember how to get back home. I started to cry when I thought of you all, maybe I would never see you again.........then it dawned on me...I'll see you all on the bus!!!"
Annual Senior Citizen Test
Only four questions. It's good to keep the brain active so relax, clear your mind and begin.
Not as straight forward as you think!!!
1. What do you put in a toaster?
2. Say "silk" ten times. Now spell "silk" What do cows drink?
3. If a red house is made from red bricks and a blue house is made from blue bricks, a black house made from black bricks, what is a green house made from?
4. No using a calculator for this one.... You are driving a bus from New York City to Philadelphia. In Staten Island 17 people got on the bus. In New Brunswick 6 people got off the bus and 9 people get on. In Windsor 2 people get off and 4 get on. In Trenton 11 people get off and 16 get on. In Bristol 3 people get off and 5 get on. and in Camden 6 people get off and 3 get on.
You then arrive at Philadelphia Station........how old is the driver??
Thursday, 13 April 2017
Yes, I will follow Jesus
I will gladly follow Him around the Sea of Galilee and be fed alongside the five thousand.
I will drink wine made from water.
I will rejoice with the blind man who can see and stand amazed at a dead man who rises from the grave.
I will follow Jesus everywhere....except ...the cross
Oh I can cope with the burdens, those everyday troubles that we all must put up with.
And besides, there are always others to help us carry those burdens.
I can accept the thorns, those annoying inconveniences that can't be avoided.
I just accept those and get on living.
But a cross?
No, it is not my inclination to take up a cross.
Unlike burdens or thorns from which we can't escape and learn to put up with...
...a cross is a choice.
A choice that Jesus willingly made.
He did not have to take it up, he could have refused.
But, no, He willingly took up His cross so that you and I might have power.
Power to carry one another's burdens.
To gladly accept our thorns.
The Lord asks us to willingly take on those difficulties and situations that we face daily
and head up the long path to Calvary
where pride and vanity, stubbornness and resentment are crucified.
His death and resurrection gives us the power to make that choice.
To daily take up our cross and follow Jesus
Monday, 10 April 2017
On Saturday husband and I took the bus to the next town to pay a visit to my mother-in-law.
This is him with his mother
It was a very hot day and the bus had the heating on full blast, we also went past several fields of oilseed rape which as an asthmatic I avoid at any cost as the mere smell of them affects my breathing. So armed with extra inhalers and a scarf over nose and mouth as we past the bright yellow fields.
It might look pretty and summery to you....
Mother-in-law lives in a small flat adjacent to the Louth Navigation Canal and as it was such a sunny day she asked if we could go a walk along the tow path...she is rather wobbly on her feet so does not like to walk alone...so we did.....
As we crossed the road this sight came into view....
What is lurking behind the tree stumps?
All was revealed!
A rather large teddy bear!
But isn't it fun?
This canal was the hub of transport for many years and slowly the old warehouses are being turned into flats
Here is one that is just about to be modernised
We walked as far as the first lock and were pleased to see how clean it was compared with our last visit.
The running water on a hot day was so calming..
....thought that I would share it with you.
Friday, 17 March 2017
you hate nothing that you have made
and forgive the sins of all those who are penitent:
create and make in us new and contrite hearts
that we, worthily lamenting our sins
and acknowledging our wretchedness,
may receive from you, the God of all mercy,
perfect remission and forgiveness;
through Jesus Christ your Son our Lord,
who is alive and reigns with you,
in the unity of the Holy Spirit,
one God, now and forever.
We are nearly half way through the forty days of Lent, the time of repentance.
The time when we search our souls, when we, as Christians ask ourselves who we are, and also whose we are.
The season of Lent is a time of soul searching preparation before the celebration of Resurrection day.
Only a truly honest view of our sin will give us a full appreciation of God's mercy.
Only when we fully understand how lost humankind really is, do we then grasp how great is our salvation.
Remember....Christ did not simply die for the general sins of the world...
He died specifically for my sin, your sin.
Can recommend this Lenten reflection by Vinita Hampton Wright
Monday, 13 March 2017
I have a lovely friend who gets really taken over by what ever the latest trend is on Pinterest.
Last year it was Hygge...a Danish word for something that most of the world has been doing for generations.
This year the trend is for "Self Care Boxes"
I got one for Christmas
It was full of things that would fulfil my 'self care wheel' in order to maintain my 'life balance'.
My friend was rather put out when I emptied the box and put the items into everyday use instead of keeping them all in the box for use when I was feeling particularly down and in need of some 'self care'
This got me thinking....
When I am in need of 'self care' it is to my Bible and prayer that I turn, not things in a box.
I am not 'self sufficient' and don't want to be.
There is too much self sufficiency about.
The dictionary definition of self sufficient is:-
1. able to supply one's own or its own needs without external assistance
2. having extreme confidence in one's own resources, powers, etc
It’s not that hard to admit that we need God’s help in this life. Only the most proud or the most foolish believe they are truly self-sufficient. Yes, we need God. Yes, we can seek from God whatever we need—help, comfort, or guidance.
But actually taking the step toward God can be not only difficult but complex. A lot of things can get in the way.
Remember one simple fact: God is for us, not against us. God waits for us, eager to help with our pain, shame, anger, or fear. The only thing to do is step forward and bring to God whatever burden hinders us.